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Profile for Patricia Dieroff (Pit Observer)

  • OFFLINE
  • Rank: Trophy Racer
  • Register Date: 27 May 2011
  • Last Visit Date: 28 Aug 2014
  • Time Zone: GMT -5:00
  • Local Time: 07:15
  • Posts: 46
  • Profile Views: 914
  • Location: Syracuse NY
  • Gender: Female
  • Birthdate: Unknown

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To Never Take a Chance is to Never Know What could Have Been

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emo
Please click on or copy and paste the following link....for a message from Klaus and Pat...

www.giveforward.com/fundraiser/v6k5/cari...3&fb_ref=2577688


Thank you all for your continued Love and Support
And a Very Special thank you to those who have already donated...Bless you and your's
Friends and Family o ...
Category: Drag Race Banter
emo
Received the BEST news today...Klaus went back last week several times for more bone scans and xrays and CT scans, We saw his Dr. Today for the results...

The nodes that had grown larger since his surgery have now shrunk, on their own without any treatment...The new spot they had seen in the last xrays that was on the back bone, that they were worried about, can no longer been seen in the xrays or scans.
His DR. kept saying he was thrilled....he even said Klaus may be one of those 2% or 3% who's symptoms dissappear. We go back again toward the end of July for more CT scans...for follow up

His incision from his surgery still has not closed all the way, and has opened up again in a second spot...but they are now trying a different procedure...We are now using HONEY...to heal it...been applying raw honey to the open wounds every night and its does seem to be helping....

I am thrilled beyond imagination to be posting this happy news...
PRAYERS HAVE HELPED.....Thank you ALL so much., Til next time..
Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
Klaus started back to work on Monday, for half days right now. So far so good. He's enjoying it and only a little tired when he gets home. WHAT A COME BACK !!! Just look at 4 months ago. His incision is still not fully healed, but getting better I think....We are still waiting for more test appointments to be set up....should be any day now...Still taking one day at a time......Thank you all for your love and support and prayers......Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
WED 2/27/13
Klaus has been back to different Dr's for different tests. They have found 3 more spots they are believing cancerous. 2 lymph nodes under his right arm on his chest wall which were enlarged before his surgery , but now have grown larger and a new spot on his right shoulder blade. The Dr. says he will run more scans and tests in a few weeks (they have not been set up yet) he says he will see Klaus again after that to see where we go from here. He has been released by all Dr's to be able to go back to work, and he will go back this coming Monday, for part of the day to see how well he can do. He will work up to full time as he's able.
His incision from the surgery has not completely closed yet, there is one stubborn spot that is about as big around as my little finger and about 1-2 inches deep and does not stop bleeding. We think its because they have increased his blood thinner (Coumadin) combined with the diabetes, its just taking forever. The new primary doctor actually mentioned taking him off the coumadin, and then increased the dosage , and increased it again today...I have written to the Dr. requesting to know why. I will let you know more as we know. All prayers and good wishes are very much appreciated. Thank you all...Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
2/6/13

Hello, tonights update...

Spent 4 hours at the Dr.s..Klaus had blood work done 1st, then a CT scan...then saw the surgeon. There are 2 lymph nodes under his right arm, that are on the right chest wall, they were enlarged before his surgery, but now they have grown larger. The Dr. says he does not want to start any aggressive treatment because Klaus is just starting to get stronger and he does not want to set him back....They are just going to watch it for now, he dosn't think 2 months will make much difference and we will go back in 2 months again for a full chest xray, ct scan and bone scan, labs etc....The biggest thing is there is a new spot on his back right shoulder blade that is concerning the Dr. He thinks maybe the cancer is trying to get into the bone there...but again he is going to wait 2 months and then see what the test show.

Klaus' incision is almost healed and will be closed soon, the Dr was pleased with that...andf he gave Klaus his permission to return to work fully with no restrictions...Klaus will see the wound care Dr next Tues and the primary Dr next Wed. and hopefyully he can get a full release from them and he can get back to work...

Now its a wait and see game...
Please keep saying prayers...

Til next time
Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
2/5/13

Klaus doing better daily (he even had the Camino out in the driveway for a bit a week or so ago) ...we're off to the surgeons tomorrow for 3 month follow up...he'll have CT scan and lab tests before seeing the Dr. to see if there is any more cancer lingering...
We'll know more tomorrow night..
He has lost so much weight (over 70 lbs since his surgery in Oct) and over 100 lbs since a year ago...that the meds he was taking he was overdosing on...He was on 12 meds...now d...own to only 3 and 2 vitamins...
His appetite is back and his blood pressure and diabetes are under control....his blood count is still way off for his kidney function....The kidney Dr. says the remaining kidney is functioning at approx 40%...and it may never get any better...or it could, it just takes more time.
The biggest issue was the incision which was 45" long from one side of him to the other...when they pulled the staples it opened up...you have all heard the story about the vacuum pump....well he is seeing the wound care clinic once a week and he had 4 places where the incision was not closed...we are now down to 1 spot which is approx 1" wide and 2 1/2" deep...I am still changing the packing and bandages twice a day...and he is starting to complain more , so I know its healing and he is getting feeling back. (the wound care clinic uses lanacaine to feeze it so he doens't feel anything....I don't get that option....I just get yelled at when I poke to hard)...*LOL* He may be back to work soon...just waiting this last wound to heal and Dr's release.
Thank you all for the well wishes and prayers.
I'll update after the Dr's tomorrow...Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
Update 1/7/13
Klaus still very weak and tired. No energy at all, no appetite...he has lost 67 lbs as of his surgery on Oct 22, and over 100 lbs since a year ago...
He has gone to a new primary care DR. and had more tests run...
His latest blood work shows his red-blood count very low again...and white blood count very high.
Other tests show high levels, where they shouldn't be....all of these changes in just 3 weeks from the time he saw his surgeon for follow up when things were all in a normal range til now and everything once again out -of-whack.
He saw his cardiologist today and the Dr. had him stop taking the blood pressure meds ...His blood pressure is very low and has been for a few weeks now, running around 80/58 or so... The Dr thinks because he's lost so much weight he no longer needs to take the meds.
He goes to the wound care clinic again tomorrow and will have tests done to see how the incision is healing, which it isn't , because there is an infection. His new primary Dr. put him on antibiotics for that...and it seems to be helping a little.
And hes set to see the Nefrologist (kidney Dr. ) next week.....to see why all of his blood work is out of control again...
Asking for your continued prayers,
Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
Its been a quiet couple of weeks, Klaus is very slowly coming along. His incision is healing extremely slowly due to his Diabetes and the blood thinner he is on, and he is still very weak and anemic, but he's with me one more day ...and for that I'm greatful...
He went to the wound care clinic last week, and all they did was repack the incision and tell him to come back in two weeks. They had poked and probed him so much that , that night when I changed his dressing, his stomach gushed blood like he'd been cut open with a sword, It was the scarriest thing I've seen in a while, and I was worried it would not stop, due to the blood thinner. But it did after a while, and he seems to be healing again. He is changing primary care doctors, and we have requested his records be sent to the new doctor. He will see him on January 3rd. He goes back the first week in Feb. to have all the scans and blood tests done again and see his surgeon, to see where we stand now....

Christmas came and went uneventfully,(even the end of the world didn't happen) and we enjoyed getting with the grandchildren and the rest of the family...
and I am hoping we start the new Year the same...

Whom ever ordered all this snow, can come and clean my 125 feet of sidewalks and my driveway
I've had my first attempt at using a snowblower ...and THAT was interesting...and my arms are ready to fall off...and I missed a day of work, cause the city doesn't plow our street until 2:00 in the afternoon and I can't get out.....

We've had our White Christmas ...it can stop anytime now

Til next update...
Klaus and I wish you and all of yours a Wonderful Healthy, Happy and Safe New Year...Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
sorry I've been slacking on the updates...I've just been very busy, now that he's home...
Klaus doing much better for now....No more Nurses..I get to play nurse...and change his bandages twice a day...He is able to drive, he actually drove to his work today and said hello, and turned in some paperwork...His stats are all in normal range, he is just still very tired. He may get to go back to work in a few weeks. He still needs to get his strength back more. He's still anemic...He's lost approx. 50lbs since Oct 22...

He goes back in Feb...to see his Surgeon, but until then...its still one day at a time...
Thank you all for all your wishes and prayers
and If I don't update again until after the holidays,
We wish you and yours all a Safe, Healthy and Happy Holiday
Klaus and Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
5:30 pm
GREAT NEWS !!!!
Saw Klaus' surgeon today for post op visit...All signs are moving in a positive direction right now...Had lab work done on Monday and all his levels are in good range. The Dr. was thrilled to see Klaus....and said "hey man" its great to see you...you look terrific, a little anemic still but wow....big improvement from the first time we met, and gave him a fist "bump" (not a hand shake) but close.
He did say with all thats happened, and the seriousness of the surgery, he is lucky to still be here one more day, and who knows what 6 weeks or 6 months down the line will bring.
Doctor says we can get rid of the physical therapist,
and he can drive, he can eat what he whatever he wants within reason.
We are not having a full body scan right now, he doesn't think its needed. He goes back the first week of Feb. and will have labs and chest xray and ct scan then, and follow up with him again.
Now we just need to get the 5" x 1" wound closed up and get him a bit stronger...and he'll be back to his old self in no time.
HAPPY HAPPY DANCE ONCE AGAIN!!!!
Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
Klaus made some more progress today....we got rid of the vacuum pump...insurance was no longer paying for it and I was not paying the $200 per day...to keep it....so now a nurse will be coming daily and changing the regular wound dressing....and it is healing up better. Maybe in another week or so...I'll be booting them all out of my house. I can change a bandage and he doesn't need the physical therapist just to watch him walk and bend his legs... Klaus is getting a bit stronger ...he's made it up and down the 13 steps to the basement and back. He's far from being ready for the olympics yet....but I think better each day.
He feels better tonight , now that the belly vac is gone and he's able to move about easier. He is still losing 1-2 lbs per day...even though he's eating and drinking....
Blood work on Monday and Dr. next Wed...and we'll no more then...
Thanks for all the support and prayers still coming our way Its much appreciated
Til next update
pat
Klaus..Dieroff
Category: Drag Race Banter
emo
Sunday 11/25..... A.M...
Klaus doing ok, still very tired and no energy, still anemic.
He is losing between 1 and 2 lbs per day....since his surgery(Oct 22nd) he has lost 50 Lbs.
The nurse is here from St Camillus home care every other day to change the vacuum seal, and his incision is healing up and looking better, but still a way to go...the physical therpist is here 2 to 3 times a week, but he is so exausted after thier sessions all he does is nap. This week no doctors, but next week he goes for blood work and then another day sees his surgeon for post op check up. We'll know more then, what more is happening.
He can have visitors here at home...if anyone wants to come over...just call first to be sure he isn't in the middle of the nurse or therapy...
Til next update...
Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
5pm....
Klaus had a very tiring day today....
The home care nurse was here to change his vacuum pump and then the physical therapist was here
(Klaus got outside and walked partway down and back up the front steps)
Then I had to take him to his primary Dr. for a followup visit (He walked the whole way without his walker)
He is pale and, still anemic according to his Dr. but the rest of his vital signs were ok.
We go the first week of Dec. for lab work and follow up with his surgeon to see what happens next...
In the mean time...home nurse is here M-W-F and physical therapist 2 or 3 x's a week
He is exausted and napping at the moment.
More updates later
Happy Thanksgiving Everyone!!!
Klaus & pat
Klaus..Dieroff
Category: Drag Race Banter
emo
Klaus and I hope everyone had a Great time at the Banquet last night, sorry we couldn't make it....

8 a.m.
We had a fun night last night, the alarm went off on the vacuum pump hooked to Klaus just before 1 a.m., the message said the machine was blocked and the therapy had stopped working. I could not find what was wrong so I changed the cannister part of the pump, and still the alarm was going off. I ended up calling the nurse for home care and over the phone we could not figure it out, and at that point I could hear air hissing out of the tube that goes into his stomach....so she came to the house about 1:45 a.m.
She ended up pulling the whole packing out and re-doing the whole thing, and re-setting the pump...she left about 2:15 and Klaus was up and down a couple of other times in the night for the bathroom, and each time I get up to help. He has to carry the pump in a little fanny pack and drape the hoses around his neck so he won't fall over them and we have to un-plug the unit , then reverse it all when he gets back to bed. Hopefully not too long...maybe another week or so...I saw the incision last night when the nurse re-did it and it looks to be healing up really well in a couple of the spots...just one larger spot that may take a while.
He's lost about 40 lbs before his surgery and 35 lbs since his surgery...but he seems to be doing a bit better each day, and his appetite is picking up and he seems to be getting a little stronger. He goes back to his family Dr. on Tuesday for a follow up visit, and back to the surgeon in a 2 or 3 weeks
And we'll know more then...
til next update
Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
Jeff and Scott....You guys are tooo funny....I've been saving these messages for klaus to read when he comes home...but he may end up busting a gut (which is the purpose of the vacuum to close) and set us back a few days again...

But they say laughter is the best medicine...

Thank you all for the support...I'm off to go collect him from the hospital right now...

I'll update later
Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
7:30
Klaus coming home tomorrow....I pick him up around 10 a.m.
He will be coming home with a portable vacuum (like I explained last night, to close the incision)
The people from St. Camillus home care will be here Saturday to evaluate him and see what kind of care he needs, and will set up a plan from there for physical therapy and to change the packing and bandages for the vacuum ...etc...
Thank you all from us both for the Love and support, and prayers along the way...we are a long way from over...
but headed in the right direction.
31 days....Whew!!!!....*big sigh*
I'll keep updating , but he should be able to post for himself in a few days
Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
7:30 pm...
Left Klaus at the hospital feeling tired. They put a vacuum in his stomach today to seal the incision, its kinda like a seal-a- meal....they put a foam sponge thingy inside and seal it over with a special tape and it has a hose hooked up to a vacuum...that pumps out the "icky" and let the cut heal from the inside out...
He says it feels much better and he has walked 3 times down the hall today and wil once more before bed...
We are still up in the air as to where they will be sending him....the hospital rehab itself can't take him , because our insurance won't cover it...so they have requested to send him to St. Camillus Nursing Rehab Center...they are reviewing his medical records and we should know tomorrow. His surgeon still thinks he can come home...
I don't think he's ready to be home yet...maybe another day or two or a week , when he can be more stable and can walk up and down stairs...
We'll see...
Update again tomorrow
Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
8 pm
Klaus will NOT be coming home yet...as much as he wants and I would like it he is not ready...he fell this morning , so I've been told, and he will not eat properly or not do the physical therapy or walk down the hall like they want him to.
He is complaining about every little thing, and making excuses as to why he "can't".

His incision is not healing well and they have it packed and change the dressing and packing several times a day...tomorrow they will be using a foam sponge and taping it inside and then using a vacuum tube of some kind to suction out the "icky" parts and then seal it with some kind of glue...

He will probably be going to a nursing home /rehab center in a day or so, as soon as they find a bed for him. The physical therapy floor at the hospital said as of right now they will not take him either.

His surgeon thinks he can go home.....I told him NO, he would be home alone all day and he is NOT ready. I will be seeing the discharge planner again tomorrow night, and know more.

I am emotionally and mentally drained from being with him tonight...I have a headache the size of Alaska...and I'm off to bed

Update again tomorrow night

Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
8pm...
Klaus walked the whole length of the hallway tonight and back...twice...with me and the walker
Where they took out the staples he is sore and leaking from both sides of the incision, they have it packed, but he is doing great...They took out the tubes today for the dialysis, so that won't be needed any longer...The kidney Dr was in to see him this morning and told him the one kidney is doing great...its not fully functioning, but doing very well
3 weeks today since surgery...His Dr. and I hugged tonight...the Dr also reinforced to klaus that the Cancer can come back at any time, and anywhere and spread quickly..he got what he could see on the xrays and scans...but ...
He also said depending on what the physical therapist says tomorrow...Klaus may be able to COME HOME!!! on Wednesday...
Klaus was really beat tonight when I left...but he's trying hard now to do what the Dr's say so he can come home...
Update again tomorrow night
Pat
Klaus..Dieroff
Category: Drag Race Banter
emo
8:30 pm...
Just home from hospital...Klaus doing very well...All IV's and tubes out...they still have the line in his neck for the Dialysis if needed , but he's been off dialysis for 3 days and his kidney is doing well...they will probably remove that line tomorrow...
He walked from his room down to the nurses station about 50 feet one way...and back, with his walker and a nurse...this morning and tonight walked a bit futher than that.
He is now on a very restricted diet ...its a Renal diet...lots of things he can no longer have....also he will be on coumadin, when he comes home ...which they have started him on. We had to watch a video about this today.
Not much different than the Plavix he's taken for 7 years...just a lot more no no's and cautions
He will probably move to a rehab facility sometime this week...he may be evaluated tomorrow or Tuesday. Update tomorrow night
Pat
Klaus..Dieroff
Category: Drag Race Banter
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